Mar

14

Blog #63

by Marilyn Herasymowych

 

Marilyn with Auntie Mary

It is darkness I fear the most,

especially the long nights of winter

that steal the morning luster of a new day.

And if the day is grey,

then I find myself lost in its edgeless malaise.

In my world,

it is darkness that devours joy,

replacing it with uncertainty and roller-coaster thoughts.

The blackness of the dark swallows my courage,

chewing it to pieces and spitting it out.

 

Continued…

Feb

27

Blog Entry #62 by Chris Rondeau

Courage – How do we draw from it? Courage is many different things and how we elect to draw from our inner strength comes from deep within. People help us tap into courage and they come into our life for a reason – we may not know nor understand what it is that they bring to help us move on with our day-to-day lives, until many years down the road. In some cases we may never know – is this because we never looked deep enough or is this because we’re not supposed to know? Urbain brought with him an amazing amount of courage, love, compassion, strength and understanding. Not to mention an enormous family.

Urbain's mother, brother and sisters

I will never forget the day that Urbain and I ventured off home to meet his family – oh my word – ten sisters and one brother. Oh, and we must remember that some of the girls were married and this just enhanced the problem. Now we as women know that other women check us out from head to toe. This is almost certainly the first time in my life that I had to draw on all my courage not to run and keep on running. It’s amazing how love will hold you steadfast and give you the courage to look fear in the eye. Let me tell you the fear was very real until Mrs. Rondeau (my-mother-in-law) opened the door. What a delightful women – warm and welcoming. The heavenly smell coming from inside the house when the door opened was the aroma of freshly made cinnamon buns – the kitchen table was covered with them. Would you expect anything else with a family that large? My fear soon melted away like butter on the hot cinnamon buns – this of course was until the rest of the family started to arrive home – but when Urbain squeezed my hand and smiled at me, this gave me the courage to confront whenever was going to be. By his side there was no fear. When everyone had arrived to check me over I was overwhelmed (I come from a small family), so many people in the house. But the love in that home was unbelievable – you could feel it. What a sensation! Everyone talking at the same time – laughing – joking and enjoying each other made my head spin. I had never experienced anything like this before. Over the years I have come to love this – it is a sound like no other in the world. I was reminded of this during our family gathering in Ottawa for Louise’s surprise 65th birthday party this November. Continued…

Feb

14

Blog Entry #61

by Marilyn Herasymowych

 

Marilyn with dear friend Bill

Tuesday, early morning.

CT scan today.

Breathe in … breathe out …

Need to assess whether or not

the treatment is working.

Breathe in … breathe out …

 

7:30 a.m., it’s always so cold.

The room is designed for machines.

Breathe in … breathe out

Listen to the technician telling

me to hold my breath.

Breathe in … hold … breathe out …

 

All week, worry bundles fill my path,

waiting for Friday to arrive.

Breathe in … breathe out

Hard to think of anything else,

Breathe in… breathe out

Harder when you don’t feel well.

Breathe in … out … in … out …

 

Friday, 4:00 p.m.,

Breathe in … breathe out

I read the CT scan report.

Breathe in … out … in … out …

“Multiple osteoblastic metastases

Scattered throughout the regional bones
are essentially stable.

Report conclusion:  Stable compared to October 2012.”

My conclusion:  Both cancers are quiet.

Maybe what I’m doing is working

To keep the cancers quiescent.

Breathe in … breathe out …

 

Note:  The phrase “breathe … breathe” was generated by another writer in a writing course that I attended.  This student was writing about anxiety.  I have borrowed this phrase to write the poem above.

Feb

3

Blog Entry #60

by Marilyn Herasymowych

It is said that bad luck comes in threes.  If true, then I have surpassed my fair share.  Two advanced and incurable cancers, plus multiple metastases in my spine, counts as three to me.  The chemo doubled the ante by depositing three lingering and life-crushing side effects as permanent residents in my body.  Good luck is well overdue.

Marilyn and Henry with friends Jane and Les

Perhaps it is because I am so used to bad luck events that I was unable to recognize good luck when it appeared.  If I really think about it, I am twice blessed as well.  Once blessed to still be alive four years after the first mind-crippling cancer diagnosis.  My cancers are lethal, but they are also slow growing, more turtle than hare.  Twice blessed was even harder to recognize.  It surged into my consciousness with the force of a tsunami, obliterating everything in its path, and paralyzing me in the vice grip of a death sentence.  There was no question in my mind.  This second blessing came with all the hallmarks of a bad luck event that foreshadowed worse things to come.

In the heat of one of our best summers on record, my reactions to medications reached biblical proportions.  I could swear I was turning to salt, a punishment for looking back and yearning for that which cannot be.  This second blessing barred every door that promised a return to normal.  I could not go back now, for sure.

Nothing I did worked.  My body rebelled against any new medications.  At the height of despair and disappointment, I was labelled palliative.  Yes, that’s what I said.  This word implied a coffin, the label telling me that I was dying from these cancers.  And there’s more.  My dying would be a scorched earth affair.  Nobody died well in palliative care, at least not in my experience.  My mother had died in agony in a palliative unit, in extreme pain, while on dangerously high dosages of morphine.  I was there.  I saw and felt her fear and her pain.  I watched her die.  There was no peace in her death mask. Continued…

Jan

6

Blog Entry #59

by Marilyn Herasymowych

Between the ages of four and ten, I lived in the North, near the 60th parallel, in a small, isolated mining town nestled inside the natural wonder of cold water lakes, rushing rivers, and unending forest.   The town itself was unremarkable, in its harsh utilitarian way, but it was surrounded by an unforgiving beauty, unforgiving because as it gave life, it also took it.  Every year someone froze to death on the side of a road or drowned in the lake.  It was a wilderness, and yet, the Boreal forest was the safest place I had ever known, safer than anywhere, safer than my own family.  I was one with the trees, the moss-covered floor, and the stained-glass light that filtered through branches and leaves.  I felt loved in the forest, in way I never felt loved anywhere else.  There, I had no fear, no anxiety, no paranoia, no sadness, and no despair.  It was home.

Marilyn Squared!

I was in first grade when I saw the wolves come down from the forest to settle, perched on the edge of the forest bordering the school yard.  It had been a severely cold winter with too much snow, and they were hungry, drawn to the town in search of sustenance, but too wary to actually go through with the plan.  I was one of many children in a one-room school house, all of us watching the wolves through frost-lined windows, our breath catching the glass, as if to remind us of the boundary between us and them.  I remember feeling drawn to the wolves, as if I belonged with them.  They felt like home, a pack, standing together, no one standing alone.  They were part of the Boreal forest, like the bears that rummaged through our garbage, like me.

Wolves had such a bad reputation, and were often hunted to oblivion based on that reputation and the fear it fed.  But I never felt that fear, and I never saw what others did in wolves.  I saw home, a place of belonging and sharing, a place in which everyone needed each other.  In that moment, I felt that the wolves understood that being together, and loving each other, was much better than being alone.  Even though I was lonely as a child in the North, I was never lonely in the Boreal forest.  No matter what happened at home or at school, I always found the forest waiting for me as I’d run into its loving embrace.

When I was ten, we moved to big city in the South, to a new suburban development.  I was devastated.  The forest was gone.  All of the trees in my neighbourhood were mere saplings, having recently been planted.  It was naked and bare, and I was lost.  There was no forest to run into, no place to feel at home.  I longed for the coolness of a green forest in summer, and the deep blankets of snow in winter that drifted past each tree, piled up like laundry waiting to be washed.  There were two spindly trees in our front yard, and not a living thing in the back.  How could anyone live here?  How could I live here?  Suddenly, I was a lone wolf, stranded and trapped in the concrete and asphalt of progress.  I worked hard to find anything that would bring me home.  I thought I could revive the North with the sound of my rubber boots in spring breaking frozen puddles in graveled back allies, and my dreams of making tunnels in deep winter snow and hiding inside when the wind blew.

When I was 16, I discovered the river valley, about an hour bike ride from my home.  I would ride down tree-lined cathedral streets, and feel the forest awakening my soul, so deeply hidden from view.  In untended corners of the river bank, I found foot paths through thickets of scrub and brush that felt wild enough to give me solace.  Although it was never enough, it kept me sane.

At 18, I rebelled.  Like a lone wolf, trapped in a corner, with no way out, I lashed out at anyone who came near me.  I raged at the world, at my family, at anyone who hurt me, and then I raged at myself for being so hurtful to others.  No one accepted my apologies, so with each outburst, I grew more and more lonely.  It was a vicious cycle of ripping relationships apart, and trying to mend the damage, only to find myself in the ruins of what was left over.  By the time I met my husband Henry, I had forgotten about the Boreal forest, and how much I needed it.  I had forgotten how to belong.  But unlike everyone else in my life, Henry didn’t react to me when I raged in my despair.  Instead he held me and soothed me and said nothing.

Henry is a quiet man, who says little, and shows a lot.  In the early days of our marriage, Henry became the safest place for me to be, safer than anywhere.  It would take years, but I would become whole in his embrace and silence, as I did when I became one with the trees, the moss-covered floor, and the stained-glass light that filtered through branches and leaves of the Boreal forest.  I felt loved in his arms, like I had felt loved in the forest, like I had felt love in the pack of wolves that had stood perched at the edge of town.  With Henry, I had no fear, no anxiety, no paranoia, no sadness, and no despair.  I was home.

Dec

9

Blog Entry #58 by Chris Rondeau

Introduction:  In March 2011, Chris’ husband Urbain was diagnosed with stage IV colon cancer.  In January 2012, Urbain lost his battle.  Chris has written the blog entry below describing her journey through her grief.

Urbain's 65th Birthday

Ann Murray’s “May I have this dance for the rest of my life”.  From across the room the most wonderful man would ask, “dance with me”. And in his arms was the safest, warmest and loveliest place in the world to be. Illness and death would take that away from us – but never the memories.  Memories keep us in touch with our loved ones and remind us how life without them would never be the same.

Open your eyes in the morning and next to you is the most wonderful person in the whole world.  The person you met, married, and shared your most private thoughts with. As the months grow into years and love grows deeper and deeper the bond between you develops into the glue that holds you together. A greater gift has never been given – the gift that will hold you a lifetime. Urbain was wonderful and he had a delightful sense of humor.  He would give you that little smile and the twinkle in his eyes when he was up to something – his whole face would light up.  You just know that something witty would be coming from those lips any minute, and sure enough you would not be disappointed.

As the month’s melt away since Urbain has passed, nothing for me has changed.  I miss him more with each passing day.  The firsts they say are the hardest to handle – this may be truth for most – but not for me.  I have come upon many firsts and it makes no difference – the pain is still acute. Moving forward is hard going – what is in store?? Darkness is a place that we find ourselves in when the feeling of helplessness engulfs us.  Oh the world looks so different now!  Standing back and watching couples enjoying each other – is an additional harsh reminder of how life can be changed in the blink of an eye.  This is the cycle of life – no one said it would be fair. Continued…

Nov

14

Blog Entry#57 by Marilyn Herasymowych

I wonder what the caterpillar feels when it is suddenly compelled to spin a cocoon around itself.  Does it wonder if it is dying as it weaves this shroud of death?  Does it know that this is a transition?  Does it feel excitement because something wonderful will happen, or does it feel profound loss at leaving its leaf-filled life?

Marilyn with long-time family friend Orest

In bridging two worlds, the caterpillar will slumber in an infinite oblivion, as if there is nothing there.  Does it dream?  And if it does, does it dream of a life left behind, or the possible life ahead?  Does it worry about not knowing what to do, or does it simply sleep unaware?  Does it feel its loss?  Is it anxious?  Is it lonely? Does it feel the future digitally disintegrating with each breath it takes?

In this protected isolation, the caterpillar awakens with an urge to push against the cocoon, to rip through layers of thread, striving to reach beyond, unable to stop itself.  Does it hurt to push so hard?  Does it feel its difference, or does it still feel like a caterpillar?  Does it know that it’s already a butterfly? Continued…

Nov

1

Blog # 56 by Marilyn Herasymowych

E-Mail Sent on April 13, 2012

Hi Everyone:

Henry and I hope all is well with you and those you love.  It’s raining here today, and will rain and snow most of the weekend, reminding us that spring is here.  Maybe there will be more green after it’s over.  Just to prepare you, this is long e-mail, but it’s probably one of the most important updates that I have sent out.

High Tea

I have finally have answers about why I have been so ill these past three years with chronic side effects that won’t go away.  On Wednesday afternoon, I met with an internist Dr. Voth.  My family doctor had seen a talk by Dr. Voth on chronic fatigue syndrome.  She thought he might be able to explain some of the chronic symptoms that have been hounding me.  Well, in short, it was the best appointment I have had throughout this whole cancer experience.  He explained everything.  Finally I have answers, which is such a blessing.  I hugged him when the appointment was over.

The appointment lasted almost 2 hours.  He asked Henry not to be present until the end of the appointment, because he believes that the story of my situation is best told by me, and that details are not as important, which is what Henry would have helped me with.  Dr. Voth asked me to tell my story right from the start, and he took notes.  When he was done, he asked me several questions, and then did a full physical examination.  When he helped me to sit up on the examination bed, he noticed how weak my lower body was.  When he was done, he asked Henry to come in, and he told us why I was struggling so much with recovery.

I need to give you a bit of background information about Dr. Voth.  He must be in his 70s, and he was a lymphoma oncologist for over 20 years, and has practiced internal medicine with a specialty in chronic fatigue syndrome for over 30 years.  He knows two of my oncologists.  So, I couldn’t have asked for a better doctor.  He was so warm and attentive, and I liked him right away. Continued…

Oct

23

Blog #55 by Marilyn Herasymowych

 

Your great mistake is to act the drama as if you were alone.

You’re never alone, there’s always someone there.

 

There’s the oncologist for lymphoma who tells you it will kill you,

a person who will orient you to chemical weapons of bodily destruction,

a receptionist who will greet you each time you come for treatment,

an oncology nurse who inserts poisonous IVs into your hands,

and a social worker who hands out reduced hotel rates.

There’s the family doctor who tries to deal with the side effects,

and the pharmacist who gives you more information than you can handle.

 

Marilyn & Emily at Women's Words 2012

Your great mistake is to act the drama as if you were alone.

You’re never alone, there’s always someone there.

 

There’s an acupuncturist to ease the pain and suffering of recovery,

a chiropractor to realign a twisted body and scattered energy system,

a massage therapist to relax your fear-infused muscles,

a physiotherapist to build your muscle strength to restart your new life,

and an occupational therapist to redesign your home.

There’s a psychologist to guide you through sessions of trauma release,

and an art therapist who asks questions that make you cry.

 

Continued…

Oct

15

Blog Entry #54

by Marilyn Herasymowych

It was a classic brownie recipe, and yet I couldn’t make it work.  My memory told me that I had made brownies from a brownie mix as a teenager in my mother’s home.  But now I wanted to make brownies from scratch, just like I was doing with all of the food I was preparing to increase my chances of living as long as I could with two cancers.  But it also had to be really good, mouth-watering good.  I had lost so much of my life to these cancers and their treatment and I needed to do something that would be amazing – brownies that would melt in your mouth with chocolaty richness, and give me an anticancer bonus with the nutrients like dark chocolate, coconut sugar, and grass fed butter.  But it didn’t seem to matter what I wanted.  No matter what I did, I couldn’t make the brownie recipe work.  Each batch came with a justified complaint:  too dry, too sweet, too hard, too dull.  And each time I compared the brownies to my memory, they failed to measure up!

The Girls are Back in Town

Like the cancers, this classic brownie recipe was defeating me.  My stubbornness kept me trying to make it work, until one day, something prompted me to try a different recipe.  I had recently purchased a whole cookbook on brownies, so I had a lot to choose from.  Up to this point I had been measuring my success by my ability to deliver a great brownie using a specific recipe that failed each time I tried to make it.  Maybe it wasn’t me; maybe it was the recipe that was the problem.  What if I was using a bad brownie recipe, and thinking it was me and my ability as a baker that was the problem?  Why had it taken me so many tries before I thought of trying another recipe?

I thought I’d try a flourless brownie recipe, which would make the recipe even more anticancer.  The recipe worked the very first time, creating these absolutely decadent deep chocolate fudgy brownies that took our breath away.  Success at last!  I originally wrote this personal essay in a writing class on June 6, 2010.  I was amazed at what I was able to learn about how stuck I got in the assumption that I was the problem, not the recipe.  Once I realized that that recipe might be the problem, I was able to find other brownie recipes that worked.  Letting go doesn’t happen easily for me.  I couldn’t get the revelation until I had tried another recipe, and tasted the brownies it produced.

Disclaimer:  According to Ralph Moss of The Moss Reports (reports on cancer treatment options), “Avoid white sugar, white flour, and white rice.  These are all over-refined and devitalized products.  Whatever nutrients they originally had were stripped away in their intensive processing (page 176).”  The recipe below has no flour, and the sugar is replaced with high nutrient low glycemic, low fructose coconut sugar.

Anticancer Flourless Brownies

These to-die-for brownies are incredibly rich in chocolate, yet not too sweet.
Under-cooking is vital to avoid dry brownies.

Preparation Time:  10-15 minutes (it’s really fast to prepare)

Baking Time:  25-30 minutes

Cooling Time (or time to serve):  10 minutes

Makes 24 brownies

Continued…